Progress on Personalised Support

This report builds on an international survey of support organisations to develop a model of personalised support.

Authors: Simon Duffy and Sam Sly

Despite all the talk about personalisation in the UK actual progress has been very slow. While several support organisations have been developing more flexible and creative forms of support these are not being promoted by commissioners or by Government. 

This report is the result of an international online survey. The survey demonstrates that:

The model of personalised support that emerges from this survey has 5 essential elements:

  1. Citizenship is the goal - People are supported to enjoy all their rights as full citizens, playing a full part in community life and developing to their utmost as a full human being
  2. Fully individualised - Service design, planning, housing, staffing and management are all organised around the needs and capabilities of the individual and their family
  3. Working in partnership - Professionals are respectful of the expertise of the person and their family and accountable to them for their work
  4. Committed and flexible - Professionals do not abandon people when times get tough, they stick with it and figure out the best solutions, changing things quickly to get it right
  5. Creative and resourceful - Support solutions are identified that build on the person’s real wealth and the resources of their community

This report is also the first major research report to be developed on behalf of the international cooperative Citizen Network. The network is now established in 10 countries with the purpose of advancing citizenship for all. The report demonstrates that many of the obstacles people face in trying to achieve citizenship could be overcome if:

Importantly the report also provides some insight into the Transforming Care Programme whose aim is to end the use of institutional placements for people with complex needs or challenging behaviour. The report suggests that this programme has not gone far enough in encouraging personalised support solutions and is unlikely to achieve its ultimate goals unless it takes a very different approach to commissioning and organising personal assistance.

Read and download the free pdf in your browser, link below.

The publisher is the Centre for Welfare Reform.

Progress on Personalised Support © Simon Duffy and Sam Sly 2017.

All Rights Reserved. No part of this paper may be reproduced in any form without permission from the publisher except for the quotation of brief passages in reviews.


Paper | 02.10.17

health & healthcare, intellectual disabilities, Personalised Support, Self-Directed Support, social care, Australia, Canada, Czech Republic, England, France, Global, Greece, Ireland (Republic), New Zealand, Northern Ireland, Scotland, Spain, USA, Wales, Paper

Sam Sly


Freelance Regulation, Health & Social Care Consultant

Simon Duffy


President of Citizen Network

Also see